“I have anterocollis, and was affected badly for many years until I found this joint ENT- Neuro clinic in summer 2014. I improved quickly and have been almost without any symptoms now for the past 3 years.
I have a rare form of anterocollis where Longus Collis is the main spasmodic muscle. I followed regular treatment at Rikshospitalet, the main hospital in Oslo, Norway (also for this kind of disorders). I got treatment every 3 months for more than four years.
As regular treatment didnt have any effect, they tried injections with CT pet-scanner, and also they tried, as the first one in the world (I was told..) ultrasound guided injections of botulintoxid in Longus Colli.
Nothing of this worked.
So when I was advice of one of my docs in Rikshospitalet to see the doctors in London, I was glad to try something new, hopeful I guess, but at that time I was not really optimistic of any treatment. I had a total of 16 treatments behind me, with 3 months intervals, every time getting hopeful, but every time having my hopes all shattered.
However, when I was there, the first time, I was told that my condition was familiar to Dr Marion and Ms Hicklin , and that they had been treating this successfully a long time.
They also had another aproach than what I was used to in Norway, they entered from a different spot with the needle and more.
Having that in mind I had tears in my eyes when I left the place, I got hopeful, and at the same time very afraid of being misled again.
About a week after treatment I felt something in my neck, firstly very gentle, but I told myself it could also be just “another good day”.
But the feeling increased the following days.
And the days that followed where the happiest days of my life.
I could stop holding my head, with one, or sometimes two arms/hands, I could exercise again, and breath freely, I could talk with a normal voice, without having my neck squeezed. I could eat and talk at the same time, I could walk on the streets again, without having to supress the very “sight of me”.
I spontainlessly laughed loudly in class, as I am a teacher, or start crying with my collegues. I never thought I would experience this again!
But here I was, finally, feeling a powerful “ease” in my neck.
I am so thankful for my treatment. Thanks to you I got my life back, a life without a constant pain, a life where joyful things really are joyful , and where I can have the profit of life.”